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Nuala Summerfield

Nuala Summerfield SGS Foundation Founder and Chair of Trustees My daughter Ophelia was born in 2011 after an uneventful pregnancy and birth. However she suffered

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Charla Andersen

Charla Andersen FundraisingI became aware of Schinzel-Giedion Syndrome in 2013 when my youngest daughter, Avery,  was six weeks old. From that time on, I tried

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