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Nuala Summerfield

Nuala Summerfield SGS Foundation Founder and Chair of Trustees My daughter Ophelia was born in 2011 after an uneventful pregnancy and birth. However she suffered

Charla Andersen

Charla Andersen FundraisingI became aware of Schinzel-Giedion Syndrome in 2013 when my youngest daughter, Avery,  was six weeks old. From that time on, I tried

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