Our Amazing Children

Meet some of our incredible children with Schinzel-Giedion Syndrome.

In this photo: Ophelia
Aaron

Aaron, USA

Adeline, Belgium

Alexandra, USA

Ava, USA

Avery 3

Avery, USA

Bailee, USA

Blake, Canada

Cameron, UK

Carla

Carla, Germany

Caroline, Canada

Elisa, Italy

Emma, Denmark

Eveleen

Eveleen, Sweden

Finley, UK

Gael, Brazil

Garrison, USA

Grace

Grace, Australia

Gregorio, Spain

Hannah Mae, UK

Isla, UK

Hania

Hania, Poland

Helen, USA

Jac, UK

Jake, USA

Jude

Jude, UK

Lincoln, Australia

Madison, Australia

Mariah, USA

Mattis

Mattis, Germany

Maya, USA

Mikolaj, Poland

Mila, USA

Muhammad Irfan Ziqri

Muhammad, Malaysia

Nael

Ophelia, UK

Sadie, USA

Scatlett

Scarlet, USA

Serenity, USA

Shayen, Germany

Stephanie, USA

Sofia

Sofia, Brazil

Tucker, USA

Wilson, UK

Xavier, USA

Family Stories

Read more about how Schinzel-Geidion Syndrome affects children and their families.
Scroll to Top