• Skip to primary navigation
  • Skip to main content
Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

  • Home
  • About SGS
    • What is SGS
    • What causes SGS
    • Classical vs. Atypical SGS
    • Features of SGS
    • How is SGS diagnosed
    • Is SGS Inherited?
    • Recurrence Risk
  • About Us
    • Our Mission & Vision
    • Our Amazing Children
    • Board of Trustees
    • Scientific and Medical Advisory Board
    • Our Partners
    • Fundraise For Us
  • For Families
    • Connect with SGS Families
    • Our Amazing Children
    • Family Stories
    • Family Conference
  • For Medical Professionals
    • SETBP1 in Epilepsy
    • SETBP1 in Oncology
    • Relevant Publications
  • SGS Registry
  • News
    • Latest News
    • Newsletters
  • Contact
  • Donate

Our Amazing Children

In this photo: Ophelia

Our Amazing Children

Meet some of our incredible children with Schinzel-Giedion Syndrome.

In this photo: Ophelia

Our Amazing Children

Meet some of our incredible children with Schinzel-Giedion Syndrome.

Title
Aaron, USA
Title
Adeline, Belgium
Title
Alexandra, USA
Garrison
Ava, USA
Title
Avery, USA
Title
Bailee, USA
Title
Blake, Canada
Garrison
Cameron, UK
Title
Carla, Germany
Title
Caroline, Canada
Title
Elisa, Italy
Garrison
Emma, Denmark
Title
Eveleen, Sweden
Title
Finley, UK
Title
Gael, Brazil
Garrison
Garrison, USA
Title
Grace, Australia
Title
Gregorio, Spain
Title
Hannah Mae, UK
Garrison
Isla, UK
Title
Hania, Poland
Title
Helen, USA
Title
Jac, UK
Garrison
Jake, USA
Title
Jude, UK
Title
Lincoln, Australia
Title
Madison, Australia
Garrison
Mariah, USA
Title
Mattis, Germany
Title
Maya, USA
Title
Mikolaj, Poland
Garrison
Mila, USA
Title
Muhammad, Malaysia
Title
Nael
Title
Ophelia, UK
Garrison
Sadie, USA
Title
Scarlet, USA
Title
Serenity, USA
Title
Shayen, Germany
Garrison
Stephanie, USA
Title
Sofia, Brazil
Title
Tucker, USA
Title
Wilson, UK
Xavier, USA
Xavier, USA

Family Stories

Read more about how Schinzel-Geidion Syndrome affects children and their families.

Learn More

Newsletter Signup

Sign-up to receive family stories and updates on our research projects and fundraising campaigns.

Privacy Policy | Cookie Policy
The translation function on this website uses Google Translate technology. The Schinzel-Giedion Syndrome Foundation is not responsible for the accuracy of the translations.

Copyright © 2023 The Schinzel-Giedion Syndrome Foundation - All Rights Reserved. Registered Charity Number 1186327. | Web Design by Franco Grech and Betty Lou Hosting

en English
af Afrikaanssq Albanianam Amharicar Arabichy Armenianaz Azerbaijanieu Basquebe Belarusianbn Bengalibs Bosnianbg Bulgarianca Catalanceb Cebuanony Chichewazh-CN Chinese (Simplified)zh-TW Chinese (Traditional)co Corsicanhr Croatiancs Czechda Danishnl Dutchen Englisheo Esperantoet Estoniantl Filipinofi Finnishfr Frenchfy Frisiangl Galicianka Georgiande Germanel Greekgu Gujaratiht Haitian Creoleha Hausahaw Hawaiianiw Hebrewhi Hindihmn Hmonghu Hungarianis Icelandicig Igboid Indonesianga Irishit Italianja Japanesejw Javanesekn Kannadakk Kazakhkm Khmerko Koreanku Kurdish (Kurmanji)ky Kyrgyzlo Laola Latinlv Latvianlt Lithuanianlb Luxembourgishmk Macedonianmg Malagasyms Malayml Malayalammt Maltesemi Maorimr Marathimn Mongolianmy Myanmar (Burmese)ne Nepalino Norwegianps Pashtofa Persianpl Polishpt Portuguesepa Punjabiro Romanianru Russiansm Samoangd Scottish Gaelicsr Serbianst Sesothosn Shonasd Sindhisi Sinhalask Slovaksl Slovenianso Somalies Spanishsu Sudanesesw Swahilisv Swedishtg Tajikta Tamilte Teluguth Thaitr Turkishuk Ukrainianur Urduuz Uzbekvi Vietnamesecy Welshxh Xhosayi Yiddishyo Yorubazu Zulu