Latest News In this photo: Scarlet Latest News Keep up to date with all of our latest news and events. In this photo: Scarlet Latest News Keep up to date with all our latest news and events. Foundation Organizes First Virtual SGS Family ConferenceThe Schinzel-Giedion Syndrome Foundation is Appointing New TrusteesSETBP1 ResearchThe SGS Foundation is a Member of COMBINEDBrainNuala’s StorySchinzel-Giedion Syndrome Awarded € 2 000 000 Newsletter Signup Sign-up to receive family stories and updates on our research projects and fundraising campaigns.