Latest News
Keep up to date with all of our latest news and events.
July 2023 Was Most Definitely For Jude!
Family and friends of Jude Hudson have raised £10,000 for The Schinzel-Giedion Syndrome (SGS) Foundation in July Emma Hudson, Secretary […]
Foundation Organizes First Virtual SGS Family Conference
SGS Family Conference August 12-14th 2022 If you didn’t make our Family Conference, you can catch up on all the […]
The Schinzel-Giedion Syndrome Foundation is Appointing New Trustees
The Schinzel-Giedion Syndrome Foundation is Appointing New Trustees The mission of The Schinzel-Giedion Syndrome Foundation is to provide support to […]
SETBP1 Research
https://www.newswise.com/articles/grant-helps-uah-s-baudry-lab-research-protein-s-interactions-in-so-called-orphan-diseases
The SGS Foundation is a Member of COMBINEDBrain
The Schinzel-Giedion Syndrome Foundation is a member of COMBINEDBrain In January 2020 The Schinzel-Giedion Syndrome Foundation joined COMBINEDBrain, a non-profit […]
Nuala’s Story
Read about Nuala and Ophelia at Rare Disease UK Nuala’s Story Share this article and raise awareness of Schinzel-Giedion Syndrome. […]