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Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

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Latest News

In this photo: Scarlet

Latest News

Keep up to date with all of our latest news and events.

In this photo: Scarlet

Latest News

Keep up to date with all our latest news and events.

Foundation Organizes First Virtual SGS Family Conference

August 1, 2022

The Schinzel-Giedion Syndrome Foundation is Appointing New Trustees

February 7, 2022

SETBP1 Research

January 18, 2022

The SGS Foundation is a Member of COMBINEDBrain

July 13, 2021

Nuala’s Story

February 28, 2021

Schinzel-Giedion Syndrome Awarded € 2 000 000

January 27, 2021

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