Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

In this photo: Ophelia

How Your Donation Helps

Help us to support children and their families living with SGS

Severe epilepsy is a major health and quality of life issue for children with Schinzel-Giedion Syndrome (SGS). Most children with SGS have frequent daily seizures which leave them exhausted and unable to interact with the world around them, with very disrupted sleep patterns.

The seizures associated with SGS are typically very difficult to control with the currently available approved anti-epilepsy medications. Tragically, these severe uncontrollable seizures are often the reason why our children die so young.

Donate now to help our epilepsy research

We are committed to bringing life-changing new epilepsy treatments for children with SGS from the laboratory to the clinic as quickly and efficiently as possible.

We have built a collaborative network of internationally renowned expert researchers and scientists in the UK, Europe and North America, who are all working together with us to achieve this goal.

Please contact us so we can acknowledge your donation or to discuss fundraising opportunities.

The Founders aim to cover the Foundations’ administrative expenses so that all donations can go towards supporting our important research projects.


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