Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

Donate Today

Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

Donate Today

How Your Donation Helps

Help us to support children and their families living with SGS

Severe epilepsy is a major health and quality of life issue for children with Schinzel-Giedion Syndrome (SGS). Most children with SGS have frequent daily seizures which leave them exhausted and unable to interact with the world around them, with very disrupted sleep patterns.

The seizures associated with SGS are typically very difficult to control with the currently available approved anti-epilepsy medications. Tragically, these severe uncontrollable seizures are often the reason why our children die so young.

Donate now to help our epilepsy research

We are committed to bringing life-changing new epilepsy treatments for children with SGS from the laboratory to the clinic as quickly and efficiently as possible.

We have built a collaborative network of internationally renowned expert researchers and scientists in the UK, Europe and North America, who are all working together with us to achieve this goal.

Please Donate Today

The Schinzel-Giedion Syndrome Foundation is a UK Registered Charity.
Registered Charity Number (England and Wales) 1186327

Direct Donation:

Bank Account:
Barclays Bank UK PLC, Leicester, LE87 2BB, UK

Account name:
The Schinzel-Giedion Syndrome Foundation

Account No:
73640035

Sort Code:
20-88-13

SWIFT:
BUKBGB22

IBAN:
GB62 BUKB 2088 1373 6400 35

Reference: Please quote your name/company

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Please contact us so we can acknowledge your donation or to discuss fundraising opportunities.

The Founders aim to cover the Foundations’ administrative expenses so that all donations can go towards supporting our important research projects.

Donation Matching

Does your employer have a Donation Matching Program?
The Schinzel-Giedion Syndrome Foundation is registered with the Benevity corporate giving platform.

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The Schinzel-Giedion Syndrome Foundation is fiscally sponsored through Rare Village Foundation, a 501(c)3 tax-exempt organization and your donation is tax-deductible within the guidelines of US law.

To claim a donation as a deduction on your US taxes, use the email donation receipt you will receive upon successful completion of your donation as your official record. Rare Village Foundation EIN: 83-4699994.

A fiscal sponsor is a nonprofit organization that provides fiduciary oversight, financial management, and other administrative services to another charitable organization. The 501(c)(3) nonprofit status of the fiscal sponsor extends to the chosen charitable organization enabling smaller organizations without 501(c)(3) nonprofit status to receive grants and donations to fund both short-term and long-term projects. Please contact us to discuss fundraising opportunities.