For Families

Schinzel-Giedion Syndrome is rare, but you are not alone. Welcome to our family!

In this photo: Xavier

Connect With SGS Families

Family Stories

Our Amazing Children

Family Conference

“As a mother of a child with SGS, The Schinzel-Giedion Syndrome Foundation and SGS community provide our family with a huge amount of support. We can share information on symptoms and treatments with people who really understand SGS and the devastating impact it can have.

Through the Foundation we feel there is hope that our child’s condition will be better understood by the medical community and more effective treatments for symptoms such as epilepsy and kidney problems will be identified.”
Emma Hudson,
Trustee and mother of Jude, UK
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