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The SGS Foundation is a Member of COMBINEDBrain

The Schinzel-Giedion Syndrome Foundation is a member of COMBINEDBrain In January 2020 The Schinzel-Giedion Syndrome Foundation joined COMBINEDBrain, a non-profit consortium of 25 patient-advocacy groups,

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Nuala’s Story

Read about Nuala and Ophelia at Rare Disease UK Nuala’s Story Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage

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Schinzel-Giedion Syndrome Awarded € 2 000 000

Research grant of over 2 Million Euros ($2.5Million) offers new hope for children with rare condition Schinzel-Giedion Syndrome Contact: Nuala Summerfield Mob: +44 (0)7957 168815

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Happy 1st Birthday to SGS Foundation!

Happy 1st Birthday to The Schinzel-Giedion Syndrome Foundation! Read the Story Here Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage

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International SGS Awareness Day

International Schinzel-Giedion Syndrome Awareness Day 13 November 2020 By Emma Hudson, Secretary and Trustee of The Schinzel-Giedion Syndrome Foundation and mum to 2-year-old Jude who

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