The Schinzel-Giedion Syndrome Foundation is a member of COMBINEDBrain In January 2020 The Schinzel-Giedion Syndrome Foundation joined COMBINEDBrain, a non-profit consortium of 25 patient-advocacy groups,
Read about Nuala and Ophelia at Rare Disease UK Nuala’s Story Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage
Research grant of over 2 Million Euros ($2.5Million) offers new hope for children with rare condition Schinzel-Giedion Syndrome Contact: Nuala Summerfield Mob: +44 (0)7957 168815
Happy 1st Birthday to The Schinzel-Giedion Syndrome Foundation! Read the Story Here Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage
International Schinzel-Giedion Syndrome Awareness Day 13 November 2020 By Emma Hudson, Secretary and Trustee of The Schinzel-Giedion Syndrome Foundation and mum to 2-year-old Jude who
