Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

About Us

In this photo: Scarlet

About Us

Find out more about the parent trustees and medical and scientific experts behind The Schinzel-Giedion Syndrome Foundation and most importantly, the incredible children that inspire us daily.

In this photo: Scarlet

About Us

Find out more about the parent trustees and medical and scientific experts behind The Schinzel-Giedion Syndrome Foundation and most importantly, the incredible children that inspire us daily.

Our Mission & Vision

Our Amazing Children

Board of Trustees

Scientific & Medical Advisory Board

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