• Skip to primary navigation
  • Skip to main content
Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

  • Home
  • About SGS
    • What is SGS
    • What causes SGS
    • Classical vs. Atypical SGS
    • Features of SGS
    • How is SGS diagnosed
    • Is SGS Inherited?
    • Recurrence Risk
  • About Us
    • Our Mission & Vision
    • Our Amazing Children
    • Board of Trustees
    • Scientific and Medical Advisory Board
    • Our Partners
  • For Families
    • Connect with SGS Families
    • Our Amazing Children
    • Family Stories
  • For Medical Professionals
    • SETBP1 in Epilepsy
    • SETBP1 in Oncology
    • Relevant Publications
  • SGS Registry
  • News
    • Latest News
    • Newsletters
  • Contact
  • Donate
In this photo: Caroline

Contact

Please get in touch, we would love to hear from you.

In this photo: Caroline

Contact

Please get in touch, we would love to hear from you.

Are you a Parent, Carer or Family Member?

Please get in touch if you would like to connect with other SGS families, join the SGS registry, or if you would like to find out more about what we do and how we can support you.

Contact

Are you a Medical Professional?

Please get in touch if you are caring for a child with Schinzel-Giedion Syndrome and would like information about the health issues that typically affect these children.

Contact

For General Enquiries

For any other enquiries including general enquiries, media and press enquiries and scientific research enquiries.

Contact

Newsletter Signup

Sign-up to receive family stories and updates on our research projects and fundraising campaigns.

Privacy Policy | Cookie Policy

Copyright © 2021 The Schinzel-Giedion Syndrome Foundation - All Rights Reserved. Registered Charity Number 1186327. | Web Design by Franco Grech and Betty Lou Hosting