Contact

Please get in touch, we would love to hear from you.

In this photo: Caroline

Are you a Parent, Carer or Family Member?

Please get in touch if you would like to connect with other SGS families, join the SGS registry, or if you would like to find out more about what we do and how we can support you.

Are you a Medical Professional?

Please get in touch if you are caring for a child with Schinzel-Giedion Syndrome and would like information about the health issues that typically affect these children.

For General Enquiries

For any other enquiries including general enquiries, media and press enquiries and scientific research enquiries.

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Schinzel-Giedion Syndrome Foundation

The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). Our foundation has been created to represent children with SGS and their families living all around the world.

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