

Our Scientific and Medical Advisory Board
We are very fortunate to have such a knowledgeable and well-respected team of scientists and medical doctors on our Advisory Board. Each of them shares our commitment to advancing the understanding of Schinzel-Giedion Syndrome and improving the lives of children born with this rare genetic disorder.

Matthew Burkhardt
Chair of Scientific and Medical Advisory Board | Preclinical Target Discovery

Dr Rocío Acuña Hidalgo
Molecular Genetics

Dr Bregje van Bon
Clinical Genetics

Dr Hans Bjornsson
Human Genetics and Epigenetics

Dr Jessica Duis
Pediatric Geneticist and Special Care Pediatrician
Newsletter Signup
Sign-up to receive family stories and updates on our research projects and fundraising campaigns.