

Our Board of Trustees
Our Trustees are all parents of children with Schinzel-Giedion Syndrome. We are all volunteers, passionately driven to raise awareness and improve the lives of children born with this rare genetic disorder.

Nuala Summerfield
Founder and Chair of Trustees

Emma Hudson
Secretary

Carina Rudolfsson
Social Media

Charla Andersen
Fundraising

Dana Bradley
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