Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

Board of Trustees

In this photo: Xavier

Board of Trustees

Meet our Trustees who are all parents of children with Schinzel-Giedion Syndrome.

In this photo: Xavier

Board of Trustees

Meet our Trustees who are all parents of children with Schinzel-Giedion Syndrome.

Our Board of Trustees
Our Board of Trustees

Our Trustees are all parents of children with Schinzel-Giedion Syndrome. We are all volunteers, passionately driven to raise awareness and improve the lives of children born with this rare genetic disorder.

Title
Nuala Summerfield

Founder and Chair of Trustees

My Story
Leina Zhang
Emma Hudson

Secretary

My Story
Carina Rudolfsson
Carina Rudolfsson

Social Media

My Story
Charla Andersen  
Charla Andersen  

Fundraising

My Story
Dana Bradley
Dana Bradley

My Story

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