Our Board of Trustees
Our Trustees are all parents of children with Schinzel-Giedion Syndrome. We are all volunteers, passionately driven to raise awareness and improve the lives of children born with this rare genetic disorder.
Nuala Summerfield
Founder and Chair of Trustees
Emma Hudson
Secretary
Carina Rudolfsson
Social Media
Adrianne Woods
Policy Making & Research
Charla Andersen
Fundraising
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