Board of Trustees

Meet our Trustees advocating for children with Schinzel-Giedion Syndrome

In this photo: Xavier

Our Board of Trustees

Our Board is made up of parents of children with Schinzel-Giedion Syndrome, as well as passionate supporters of the cause.

We are all volunteers, working tirelessly to raise awareness and improve the lives of children born with this rare genetic disorder.

Nuala Summerfield
Founder and Chair of Trustees
Emma Hudson
Carina Olsen
Social Media
Aleksandra Blagunovski
Dana Bradley
Community Engagement & Clinical Research
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