In this photo: Ophelia

Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

Interested in Fundraising for The SGS Foundation?

Help us to support children and their families living with SGS

Your support is greatly appreciated and 100% of all funds raised will go to supporting research focused on developing life-changing therapies for children with SGS.

There are lots of different ways to Fundraise for us. Have a look at the options below and get in touch if you need any further information or support. You can reach us at

Fundraising Ideas


  • Online Personal Donation
    You can donate securely on our website.
  • Facebook Personal Donation
    Visit our Facebook Page and click the donate button! It is that easy and you get to choose the amount of money you want to donate.
  • Recurring Personal Donation
    When donating on our website or Facebook, you can choose to set it up as a monthly donation. Sign up for the year in one easy step. If you would like to suspend or cancel your donation, just reach out to SGS Foundation directly at any time.

SGS Merchandise

  • We have a store! Visit Bonfire, make purchases, and The SGS Foundation gets a percentage of the profits of each sale.

Just Giving

  • Create a Just Giving Fundraiser by going to their website.
  • Search “Schinzel Giedion.”
  • Scroll to the bottom of the page and click The Schinzel-Giedion Syndrome Foundation charity.
  • You can choose to fundraise or donate.
  • Look at ideas for hosting an event if you want to create a fundraiser.

Facebook Donations

  • Create and write a post on your page, please make it public.
  • At the bottom of your post, hit the three dots for more options.
  • Click “Support Nonprofit” or “Raise Money.”
  • A search box will come up for you to search your nonprofit. Search and click on Schinzel-Giedion Syndrome Foundation.
  • A donate button will be added to your post. Click the blue Post button at the bottom of your post and you are done!
  • Don’t forget to send thank you notes to those that support The SGS Foundation.

Facebook Fundraiser

  • Go to Schinzel-Giedion Syndrome Foundation Facebook page.
  • Click on the “Fundraisers” tab at the top of the page under the header.
  • Click on the “Raise Money” button under the “Create a Fundraiser” header.
  • Choose an amount you would like to raise and the currency.
  • Press Create and share with all your Facebook friends.
  • Remember, videos and posts will help you reach your goal!

Host an Event

  • Have fun creating your own fundraiser and donating the money to The SGS Foundation.
  • Check out Nord’s A-Z Fundraising Ideas. There are so many to choose from and people of all ages can participate.
  • Make sure to share pictures using our hashtag! #sgsfoundation

Find Out More About Us

Our Amazing Children

Meet some of our incredible children with SGS.

About SGS

What is SGS, diagnosis and symptoms.

Support Us

Find out the different ways in which you can support us.
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