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Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

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Dr. Hans Bjornsson, M.D., Ph.D.

Dr. Hans Bjornsson, M.D., Ph.D.

Dr. Bjornsson did his graduate work under the supervision of Andrew P. Feinberg, a leader in the field of epigenetics. He then joined the combined program in pediatrics and human genetics at Johns Hopkins. During his residency training, Dr. Bjornsson worked with Dr. Hal Dietz, a leader in the field of developing therapeutic options for patients with Mendelian disorders. In 2012, Dr. Bjornsson became an Assistant Professor of Pediatrics and Genetics at the McKusick-Nathans Institute of Genetic Medicine at Johns Hopkins. He has received multiple awards while at Johns Hopkins for research and clinical care. Dr. Bjornsson founded the Epigenetic and Chromatin Clinic in 2012, which is dedicated to the care of patients with epigenetic disorders and disorders of epigenetic machinery. He currently is Associate Professor of Genetics at Johns Hopkins University and Professor of Translational Medicine and Pediatrics at the University of Iceland.

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Scientific and Medical Advisory Board

Scientific and Medical Advisory Board
Our Scientific and Medical Advisory Board

We are very fortunate to have such a knowledgeable and well-respected team of scientists and medical doctors on our Advisory Board. Each of them shares our commitment to advancing the understanding of Schinzel-Giedion Syndrome and improving the lives of children born with this rare genetic disorder.

Title
Matthew Burkhardt

Chair of Scientific and Medical Advisory Board | Preclinical Target Discovery

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Leina Zhang
Dr Rocío Acuña Hidalgo

Molecular Genetics

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Title
Dr Bregje van Bon

Clinical Genetics

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Dr Hans Bjornsson
Dr Hans Bjornsson

Human Genetics and Epigenetics

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Dr Jessica Duis
Dr Jessica Duis

Pediatric Geneticist and Special Care Pediatrician

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