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RNA Therapy May Be a Solution for Infant Hydrocephalus

RNA Therapy May Be a Solution for Infant Hydrocephalus

September 22, 2026

 New research at McGill University offers hope for preventing hydrocephalus, a serious condition affecting some children with Schinzel-Giedion Syndrome (SGS). […]

New Research on Immunology & SGS with Dr Sarah Potter and Dr Artem Barski at Cincinnati Children’s Hospital

New Research on Immunology & SGS with Dr Sarah Potter and Dr Artem Barski at Cincinnati Children’s Hospital

August 10, 2026

Why are people with SGS more susceptible to infections? We are excited to be supporting a new immunology research project […]

Hope in a Strand: RNA Research Offers a Chance in the Battle Against Schinzel-Giedion Syndrome

Hope in a Strand: RNA Research Offers a Chance in the Battle Against Schinzel-Giedion Syndrome

November 4, 2025

A groundbreaking RNA therapy project at McGill University, led by Professor Carl Ernst, is exploring a potential treatment for Schinzel-Giedion […]

Schinzel-Giedion Syndrome: Communication, Feeding and Motor Skills in 16 Individuals

Schinzel-Giedion Syndrome: Communication, Feeding and Motor Skills in 16 Individuals

August 6, 2025

This study provides important new information about communication, feeding and motor skills in children with Schinzel-Giedion Syndrome (SGS). Researchers studied […]

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