Dr. Jessica Duis, M.D.
Dr Jessica Duis is a pediatric geneticist and special care pediatrician at Children’s Hospital Colorado. She did her training at Johns Hopkins in Baltimore, MD, where she focused her work on epigenetic disorders. She has built multidisciplinary Centers of Excellence across the United States with a focus on patient care, establishing standards of care, translational research, clinical trial design, and outcome measures. She is an expert of Angelman, Duplication 15q, and Prader-Willi syndromes and has published guidelines on their management. Her research has included investigator-driven clinical trials and translational outcome measure design both in the lab and in the natural environment.

Scientific and Medical Advisory Board

Our Scientific and Medical Advisory Board
We are very fortunate to have such a knowledgeable and well-respected team of scientists and medical doctors on our Advisory Board. Each of them shares our commitment to advancing the understanding of Schinzel-Giedion Syndrome and improving the lives of children born with this rare genetic disorder.

Matthew Burkhardt
Chair of Scientific and Medical Advisory Board | Preclinical Target Discovery

Dr Rocío Acuña Hidalgo
Molecular Genetics

Dr Bregje van Bon
Clinical Genetics

Dr Hans Bjornsson
Human Genetics and Epigenetics

Dr Jessica Duis
Pediatric Geneticist and Special Care Pediatrician
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