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Schinzel-Giedion Syndrome Awarded € 2 000 000

Research grant of over 2 Million Euros ($2.5Million) offers new hope for children with rare condition Schinzel-Giedion Syndrome Contact: Nuala Summerfield Mob: +44 (0)7957 168815

January 27, 2021 No Comments
Latest News
Happy 1st Birthday to SGS Foundation!

Happy 1st Birthday to The Schinzel-Giedion Syndrome Foundation! Read the Story Here Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage

January 12, 2021 No Comments
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International SGS Awareness Day

International Schinzel-Giedion Syndrome Awareness Day 13 November 2020 By Emma Hudson, Secretary and Trustee of The Schinzel-Giedion Syndrome Foundation and mum to 2-year-old Jude who

November 9, 2020 No Comments

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Schinzel-Giedion Syndrome Foundation

The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). Our foundation has been created to represent children with SGS and their families living all around the world.
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