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July 2023 Was Most Definitely For Jude!

Family and friends of Jude Hudson have raised £10,000 for The Schinzel-Giedion Syndrome (SGS) Foundation in July Emma Hudson, Secretary of The SGS Foundation and

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SETBP1 Research

https www newswise com articles grant helps uah s baudry lab research protein s interactions in so called orphan diseases

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The SGS Foundation is a Member of COMBINEDBrain

The Schinzel-Giedion Syndrome Foundation is a member of COMBINEDBrain In January 2020 The Schinzel-Giedion Syndrome Foundation joined COMBINEDBrain, a non-profit consortium of 25 patient-advocacy groups,

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Nuala’s Story

Read about Nuala and Ophelia at Rare Disease UK Nuala’s Story Share this article and raise awareness of Schinzel-Giedion Syndrome. Back to Homepage

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