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Latest News
July 2023 Was Most Definitely For Jude!

Family and friends of Jude Hudson have raised £10,000 for The Schinzel-Giedion Syndrome (SGS) Foundation in July Emma Hudson, Secretary of The SGS Foundation and

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SETBP1 Research

https://www.newswise.com/articles/grant-helps-uah-s-baudry-lab-research-protein-s-interactions-in-so-called-orphan-diseases

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The SGS Foundation is a Member of COMBINEDBrain

The Schinzel-Giedion Syndrome Foundation is a member of COMBINEDBrain In January 2020 The Schinzel-Giedion Syndrome Foundation joined COMBINEDBrain, a non-profit consortium of 25 patient-advocacy groups,

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Nuala’s Story

Read about Nuala and Ophelia at Rare Disease UK Share this article and raise awareness of Schinzel-Giedion Syndrome.

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