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Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

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Nuala’s Story

Read about Nuala and Ophelia at Rare Disease UK

Nuala’s Story

Share this article and raise awareness of Schinzel-Giedion Syndrome.

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