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2024 Million Dollar Bike Ride Pilot Grant Program The Orphan Disease Center (ODC) at the University of Pennsylvania is pleased to announce the 2024 Million
August 30, 2024
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Article & News
Author: Christina Davis
Aaron’s Story Aaron has been Aaron since our 20-week anatomic ultrasound. Soon after revealing that we were having a baby boy, our obstetrician explained
May 15, 2024
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Trustees
Scott Galasinski, Ph.D. Rare Disease Therapeutics Development Scott Galasinski has worked in both biotech and pharma, including Head of BioPharmaceuticals Business Development at AstraZeneca, Head
May 11, 2024
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Trustees
Dr. Jordan Whitlock , Ph.D. Pediatric Rare Diseases Dr. Jordan Whitlock specializes in pediatric rare diseases. She obtained her doctoral degree in Genetics, Genomics, and
April 25, 2024
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Trustees
Aleksandra Blagunovski Fundraising Parenthood did not have an easy start for us. Our son Martin had difficulties breathing at birth and we were immediately separated
April 25, 2024
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