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Author: Christina Davis
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Read the SGS GeneReview publication

Want to learn more about Schinzel-Giedion Syndrome? Read the new GeneReviews for Schinzel-Giedion Syndrome written by experts Dr Jessica Duis and Dr Bregje van Bon

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Join Our Board of Trustees

2024 Million Dollar Bike Ride Pilot Grant Program The Orphan Disease Center (ODC) at the University of Pennsylvania is pleased to announce the 2024 Million

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Aaron’s Story   Aaron has been Aaron since our 20-week anatomic ultrasound. Soon after revealing that we were having a baby boy, our obstetrician explained

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