Recent News
New research at McGill University offers hope for preventing hydrocephalus, a serious condition affecting some children with Schinzel-Giedion Syndrome (SGS). In mice with the SGS
September 22, 2026
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Article & News
Author: Christina Davis
Recent News
Why are people with SGS more susceptible to infections? We are excited to be supporting a new immunology research project led by Dr Sarah Potter
August 10, 2026
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Trustees
Meghan Swantkowski Clinical Research Coordinator Meghan is originally from Houston, Texas, and is currently a master’s student in Genetic Counseling at the University of Pennsylvania
March 23, 2026
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Recent News
A groundbreaking RNA therapy project at McGill University, led by Professor Carl Ernst, is exploring a potential treatment for Schinzel-Giedion Syndrome (SGS) by targeting the
November 4, 2025
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Recent News
This study provides important new information about communication, feeding and motor skills in children with Schinzel-Giedion Syndrome (SGS). Researchers studied 16 individuals with SGS through
August 6, 2025
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Dr. Lilit Antonyan Research ScientistDr. Lilit Antonyan is a research scientist based in Montreal, Canada, with deep expertise in rare genetic disorders. Her work focuses
May 25, 2025
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