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August 30, 2024
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Author: Christina Davis
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Want to learn more about Schinzel-Giedion Syndrome? Read the new GeneReviews for Schinzel-Giedion Syndrome written by experts Dr Jessica Duis and Dr Bregje van Bon
August 30, 2024
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Being told that your child has a diagnosis of Schinzel-Giedion Syndrome (SGS) can feel very overwhelming and frightening, and you will have lots of questions
August 30, 2024
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2024 Million Dollar Bike Ride Pilot Grant Program The Orphan Disease Center (ODC) at the University of Pennsylvania is pleased to announce the 2024 Million
August 30, 2024
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Aaron’s Story Aaron has been Aaron since our 20-week anatomic ultrasound. Soon after revealing that we were having a baby boy, our obstetrician explained
May 15, 2024
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Scott Galasinski, Ph.D. Rare Disease Therapeutics Development Scott Galasinski has worked in both biotech and pharma, including Head of BioPharmaceuticals Business Development at AstraZeneca, Head
May 11, 2024
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