Trustees
Meghan Swantkowski Clinical Research Coordinator Meghan is originally from Houston, Texas, and is currently a master’s student in Genetic Counseling at the University of Pennsylvania
March 23, 2026
No Comments
Article & News
Author: Christina Davis
Dr. Lilit Antonyan Research ScientistDr. Lilit Antonyan is a research scientist based in Montreal, Canada, with deep expertise in rare genetic disorders. Her work focuses
May 25, 2025
No Comments
News Carousel
Coming Soon! Back to Home
August 30, 2024
No Comments
News Carousel
Want to learn more about Schinzel-Giedion Syndrome? Read the new GeneReviews for Schinzel-Giedion Syndrome written by experts Dr Jessica Duis and Dr Bregje van Bon
August 30, 2024
No Comments
News Carousel
Being told that your child has a diagnosis of Schinzel-Giedion Syndrome (SGS) can feel very overwhelming and frightening, and you will have lots of questions
August 30, 2024
No Comments