Trustees
Dr Rocío Acuña Hidalgo Molecular Genetics Rocío Acuña Hidalgo, Ph.D. is a medical doctor and human geneticist based in Berlin, Germany. Her expertise lies in bringing together
July 15, 2020
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Category: Trustees
Trustees
Matthew Burkhardt Chair of Advisory Board Matthew has over 15 years of experience in preclinical target discovery across academic, startup, and industry sectors. He began
July 15, 2020
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Trustees
Dr. Bregje van Bon, M.D., Ph.D. Dr. Bregje van Bon, M.D., Ph.D. is a clinical geneticist at Radboud Medical Center, Nijmegen, the Netherlands. She combines clinical work
June 19, 2020
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Trustees
Nuala Summerfield SGS Foundation Founder and Chair of Trustees My daughter Ophelia was born in 2011 after an uneventful pregnancy and birth. However she suffered
June 16, 2020
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Charla Andersen FundraisingI became aware of Schinzel-Giedion Syndrome in 2013 when my youngest daughter, Avery, was six weeks old. From that time on, I tried
June 16, 2020
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