To provide support for families caring for a child with Schinzel-Giedion Syndrome (SGS), to raise awareness of SGS and to facilitate and support medical research.
In this photo: Avery
Our mission is to provide support for families caring for a child with SGS, to raise awareness of Schinzel-Giedion Syndrome (SGS) and to facilitate and support medical research that will help us find better treatments to improve the quality and length of life of children living with this devastating rare genetic disorder.
Did you miss the first ever SGS Virtual Family Conference on August 12-14th 2022?
Catch up on all the recorded sessions here!
Find Out More About Us
Our Amazing Children
Meet some of our incredible children with SGS.
What is SGS, diagnosis and symptoms.
Find out the different ways in which you can support us.
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