A Wonderful Life for Scarlet
This incredible film was accepted to Disorder: The Rare Disease Film Festival which will take place in New York, November 2020. It features Scarlet, a little girl with Schinzel-Giedion Syndrome. Thank you to her family for sharing this honest and personal glimpse into their daily lives.
“For us, the Schinzel-Giedion Syndrome Foundation means Hope.
Hope that we have a voice, Hope that the world will know our families and Hope that people are invested in our children’s futures.
The Foundation bridges the gap between families, researchers and medical professionals, for the benefit of children with Schinzel-Giedion Syndrome around the world.”
Jennifer Wagner, Trustee and mother to Scarlet, USA
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