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Schinzel-Giedion Syndrome Foundation

Schinzel-Giedion Syndrome Foundation

Providing support for families caring for a child with Schinzel-Giedion Syndrome.

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Donate

Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

Support Our Vital Research

There is no cure for Schinzel-Giedion Syndrome. But with your help, there is hope that our children born with this devastating condition will live longer, healthier and happier lives.

Help us to support children and their families living with Schinzel-Giedion Syndrome

Severe epilepsy is a major health and quality of life issue for children with Schinzel-Giedion Syndrome (SGS). Most children with SGS have frequent daily seizures which leave them exhausted and unable to interact with the world around them, with very disrupted sleep patterns.

The seizures associated with SGS are typically very difficult to control with the currently available approved anti-epilepsy medications. Tragically, these severe uncontrollable seizures are often the reason why our children die so young.

Donate now to help our epilepsy research

Being told your child will suffer with severe epilepsy and will likely die before their 4th birthday is completely devastating and heartbreaking for any parent or carer.

This is the reality for parents and carers of children with SGS.

The Schinzel-Giedion Syndrome Foundation is committed to bringing life-changing new epilepsy treatments for children with SGS from the laboratory to the clinic as quickly and efficiently as possible.

We have built a collaborative network of internationally renowned expert researchers and scientists in the UK, Europe and North America, who are all working together with us to achieve this goal.


Together we will do it!

Right now we need your help to raise £100,000 to support these vital research efforts.
With your help, there is hope that our amazing children will live longer, healthier and happier lives.

SGS is a UK registered charity (Registered Charity Number 1186327) but our research is for the benefit of all children with Schinzel-Giedion Syndrome around the world.

DONATIONS

Please drop us a note via contact us so we can acknowledge your donation.


Here are our direct donation details:

Bank Account: Barclays Bank UK PLC, Leicester, LE87 2BB, UK
Account name: The Schinzel-Giedion Syndrome Foundation
Account No: 73640035
Sort Code: 20-88-13
Reference: Please quote your name/company

Please drop us a note via contact us so we can acknowledge your donation.

You can also contact us to discuss making a donation or if you would like to fundraise for us.


Also, you can select The Schinzel-Giedion Syndrome Foundation to receive a percentage of the proceeds from your purchases by going to Amazon Smile.

Please Donate Today.
Support our Research and Bring Hope to Affected Families Worldwide

Find Out More About Us

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Our Amazing Children

Meet some of our incredible children with SGS.

Learn More
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About SGS

What is SGS, diagnosis and symptoms.

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Our Advisory Board

Meet the international team of medical and scientific experts advising the SGS Foundation.

Learn More

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