Help us to support children and their families living with Schinzel-Giedion Syndrome

Severe epilepsy is a major health and quality of life issue for children with Schinzel-Giedion Syndrome (SGS). Most children with SGS have frequent daily seizures which leave them exhausted and unable to interact with the world around them, with very disrupted sleep patterns.

The seizures associated with SGS are typically very difficult to control with the currently available approved anti-epilepsy medications. Tragically, these severe uncontrollable seizures are often the reason why our children die so young.

Donate now to help our epilepsy research

Being told your child will suffer with severe epilepsy and will likely die before their 4th birthday is completely devastating and heartbreaking for any parent or carer.

This is the reality for parents and carers of children with SGS.

The Schinzel-Giedion Syndrome Foundation is committed to bringing life-changing new epilepsy treatments for children with SGS from the laboratory to the clinic as quickly and efficiently as possible.

We have built a collaborative network of internationally renowned expert researchers and scientists in the UK, Europe and North America, who are all working together with us to achieve this goal.