My husband Richard and I are parents to our son, Alex. We live in New York City. Until recently I worked in Human Resources at JPMorgan Chase, a leading financial services firm. After a 25-year career in the fast-paced New York finance industry, I decided I wanted to use my skills as a leader, communicator, and problem solver for a different cause.
I have a BA in Psychology and an MBA in Industrial Organizational Psychology. During my career at JPM, I worked in several lines of business and served as a global talent and organizational development manager, employee experience manager and HR Business Partner.
My interest in rare disease was piqued by my personal experience at an early age with members of my own family. The difficulties we had in obtaining an accurate diagnosis for my mother’s Lupus meant that I spent many hours reviewing biomedical research publications. And my childhood summers included living with my aunt who has Down Syndrome. During those vacations I saw first-hand the impact such a condition can have on daily life. So, from an early age I developed a deep empathy for those suffering with a chronic condition.
I am passionate about engaging the SGS Community to participate in research studies that will be critical for future clinical trials. I am also a strong advocate for health equity and inclusion and have been working hard to ensure that the global SGS community can participate in our research studies using their native languages.
Board of Trustees
Our Board of Trustees
Our Trustees are all parents of children with Schinzel-Giedion Syndrome. We are all volunteers, passionately driven to raise awareness and improve the lives of children born with this rare genetic disorder.
Founder and Chair of Trustees
Community Engagement & Clinical Research
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